"...TO ADD LIFE TO A
CHILD'S YEARS NOT SIMPLY YEARS TO A CHILD'S LIFE."
We can't give our kids much but we can give
them a WHOLE LOT of LOVE and all of the COMFORTS OF HOME!
Dylan stays at home with his family and is
cared for by close family and friends 24 hours/day. At the age of 4, we
finally got up the courage to implore the help of home nursing care. One
reason was to provide him with the full time care he needed while chasing his
baby brother around and staying awake around the clock!
We were unaware that we were eligible for
nursing care so once we received information from another family in the State of
Pennsylvania, we looked into the benefits of nursing. The first place we
researched was the Liam Lawson Foundation for palliative care of pediatric
www.liamlawsonfoundation.org. They directed us to a few nursing
agencies where we struck out for pediatric care until Bayada Nurses
www.bayada.com answered our plea!
Needless to say, we were very hesitant about
bringing strangers into our home, especially to care for Dylan while we were
sleeping. So, we compromised...we sleep right by Dylan's side while the
nurse stays awake to watch after his needs! Dylan is with a family member
at all times.
For those families that cannot coordinate care
for your child in quite the same manner, there are other alternatives.
to explore full time care options for your little angel.