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Our 1st annual golf outing for Tay-Sachs Disease, "Drive FORE a Cure", was held on May 24, 2004.  More than 80 golfers enjoyed the event, which was hosted by Honey Brook Golf Club on a beautiful Monday morning.  Our volunteers arrived at the break of dawn anxious to help and golfers trickled in ready to fight for a cure and have a good time.  While doing so, they helped us raise over $9,000 through greens fees and raffles!  A Special Thanks to everyone who participated in the outing, we look forward to next year's already!  If you are interested in volunteering for the event, please contact Maureen Hayes to sign up for the 2005 Golf Outing Committee. 

‘Twas a magnificent Monday in May,
Volunteers rose before the break of day.
Golfers filed in one by one
To help a good cause and to have some fun.

The greens were in superb condition,
And the sun graced us with a golden glow.
Yet we can’t forget it’s all for an important mission,
A little boy of two hopes to be able to grow.
So that someday he too may be golfing with his daddy,
Or perhaps he wouldn’t mind being grand pop's caddy?
Honey Brook welcomed you, each and every one,
While the Amish and their horses carried on.

Raffles, stadium seats and a few putts for dough,
We raised Ten Thousand Dollars but have many more to go!

Our goal is simple…To find a Cure,
It will not be easy that’s for sure.
But we must continue to fight until our kids suffer no more.

Tay-Sachs teaches us strength, perseverance & zest for life.
Without faith in God, our battle would be lost.
But it’s a little boy known as "DJ" who makes us fight.
And so we will never give up, no matter what the cost.

As we look into his eyes and pray he will prevail,
We can’t help but wonder if it’s to no avail.
But it is for this very reason that we continue our quest.
Lysosomal storage disorders bear no mercy, There’s rarely a moment’s rest.
Our search won’t end until we’ve a cure for those who seek.
So for now, our children still lie waiting,
their muscles way too weak.

Thank you for your help in battling
this horrific disease called Tay-Sachs,
As we fight to gather all of the scientific facts.
At least we know, it was on you we could depend,
You were there for us, and to Dylan you are a true friend.












Copyright ©2004 Dylan James Manning Foundation For Tay Sachs